Privacy Policy

Last Updated February 28, 2019

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The Fisher Center for Alzheimer’s Research Foundation (“The Fisher Center”, “we”, “us”) cares about privacy and wants you to be familiar with how we collect, use and disclose your Personally Identifiable Information (“PII”) (as defined below). This Privacy Policy describes our practices in connection with PII that we collect through our ALZinfo.org and alztalk.org websites (the “Sites”) This policy does not govern our collection of information through any other web site, or by any other means, other than through the Sites.


I. I. What Types of Information Does Fisher Center Collect From Me? The Fisher Center gathers two basic types of information through the Sites: PII and Non-PII. PII is information that identifies you as an individual. Non-PII is aggregated information, demographic information, IP addresses and any other information that does not reveal specific identifying information about you.

a) PII. In order for you to take advantage of particular opportunities provided through the Sites, we may require that you furnish PII, such as your name, postal address, telephone number, e-mail address, date of birth, and occupation. For example, we may collect PII when you create your Profile upon registering as a user of the Forums, or when you make a donation, or when you contact us. We collect PII from you only when you voluntarily provide it to us.

b) Non-PII. When you visit and interact with the Sites, Fisher Center and third parties with whom the Fisher Center has contracted to provide services to the Fisher Center may collect Non-PII (for example, a catalog of the Site pages you visit). Non-PII is generally collected from four different sources: server log files, cookies, pixel tags and aggregated information.

i. Server Log Files. Your Internet Protocol (IP) address is an identifying number that is automatically assigned to your computer by your Internet Service Provider (ISP). This number is identified and logged automatically in our server log files whenever you visit the Sites, along with the time(s) of your visit(s) and the page(s) that you visit. IP addresses can be used to calculate site usage levels, to help diagnose problems with the Sites’ servers, and to administer the Sites. Collecting IP addresses is standard practice on the Internet and is done automatically by many websites.

ii. Cookies. We and our service providers may use “cookies” on the Sites. Cookies are data that a web server transfers to an individual’s computer for record keeping purposes. Cookies are an industry standard used by most websites, and can facilitate users’ ongoing access to and use of a particular website. Cookies do not cause damage to your computer systems or files. If you do not want information collected through the use of cookies, there is a simple procedure in most browsers that allows you to automatically decline cookies, or to be given the choice of declining or accepting the transfer of a particular cookie, or cookies from a particular website, to your computer.

iii. Pixel tags. We and our service providers may also use so-called “pixel tags”, “web beacons”, “clear GIFs” or similar means (collectively, “Pixel Tags”) in connection with some Site pages and HTML-formatted e-mail messages to, among other things, compile aggregate statistics about Site usage and response rates. A Pixel Tag is an electronic image, often a single-pixel (1×1), that is ordinarily not visible to Site visitors and may be associated with cookies on the visitors’ hard drives. Pixel Tags allow us to count users who have visited certain pages of the Sites and to deliver branded services, and to help determine the effectiveness of promotional campaigns. When used in HTML-formatted e-mail messages, Pixel Tags can tell the sender whether and when the e-mail has been opened.

iv. Aggregated Information. We may aggregate PII in a manner, such that the end-product does not personally identify you or any other user of the Sites, for example, by using PII to calculate the percentage of our users who have a particular telephone area code. Such aggregate information is considered Non-PII for the purposes of this Policy.

II. How is Information Collected on the Sites Used?

a) Personally Identifiable Information. The Fisher Center may use your PII in the following ways:

i. Fulfillment of requests. We use your PII to fulfill any request you make at the time you provide the PII.

ii. Administrative Communications. From time to time, in our sole discretion, we may use your PII to e-mail to you important information regarding the Sites, or changes to our terms, conditions and policies. Because this information may be important to your use of the Sites, you may not opt out of receiving these e-mails.

iii. Profiles. Please note that your Profile, including all PII available on your Profile, may be viewable by other users. We urge you to exercise discretion and caution when deciding to disclose your PII, or any other information, in your Profile. FISHER CENTER IS NOT RESPONSIBLE FOR THE USE BY OTHERS OF THE INFORMATION THAT YOU DISCLOSE IN YOUR PROFILE.

iv. Forums. Fisher Center and/or our third party service provider(s) may make available through the Sites interactive services (including without limitation, message boards, blogs and wikis) to which you are able to post information and materials (each, a “Forum”). Please note that any information you disclose in a Forum becomes public information, and may be available to other visitors to the Sites and to the general public. In addition, when you choose to submit PII when you register as a user to a Forum, certain PII, such as your name, may be available for other users to view when you make a posting to a Forum. Information regarding your activities in Forums is also available for view by other users. For example, other users may be able to view a list of all postings you have made in all available Forums. We urge you to exercise discretion and caution when deciding to disclose your PII, or any other information, in any Forum. THE FISHER CENTER IS NOT RESPONSIBLE FOR THE USE BY OTHERS OF THE INFORMATION THAT YOU DISCLOSE IN FORUMS.

b) Non-Personally Identifiable Information. Because Non-PII does not personally identify you, we (including our affiliates) may use such information for any purpose. In addition, we reserve the right to share such Non-PII, which does not personally identify you, with third parties, for any purpose. Please note that to the extent any Non-PII is linked with PII, such linked information will be treated as PII as long as it is so linked.

III. How does the Fisher Center Disclose Personally Identifiable Information Collected Through the Sites?

a) Third Party Service Providers. We work with third parties who provide services including but not limited to web site hosting, data analysis and other services of an administrative nature. We reserve the right to share your PII with these third parties solely for the purpose of enabling these third parties to provide such services.

b) Registered users. Some features of our sites are only available for registered users. We may share PII that you choose to submit upon registering with other registered users.

c) Assignment. We reserve the right to transfer any and all PII that we collect from users of the Sites to a third party in the event of any sale, transfer or other disposition of all or any portion of Fisher Center’s assets.

d) Law enforcement; emergencies; compliance. Notwithstanding any other provision of this Policy to the contrary, we reserve the right to disclose your PII as we believe to be appropriate: a) under applicable law; b) to comply with legal process or governmental requests; c) to enforce our Terms of Service; d) to protect our operations or those of any affiliates; e) to protect the rights, privacy, safety or property of the Fisher Center, its affiliates, you or others; and (f) to permit us to pursue available remedies or limit the damages that we may sustain.

IV. Other Important Notes Regarding Our Privacy Practices

a. Notice Regarding Security. We seek to have security measures and tools in place to help protect against the loss, misuse and alteration of the information under our control. Unfortunately, there is no such thing as perfect security in an online environment. Please do not send sensitive information to us via our web site or e-mail. If you have reason to believe that your interaction with us is no longer secure (for example, if you feel that the security of any account you might have with us has been compromised), you must immediately notify us of the problem by contacting us in accordance with “Contacting Us” below.

b. Third Party Sites. The Sites may contain links to third party web sites. These linked sites are not under the Fisher Center’s control and we are not responsible for the privacy practices or the contents of any such linked site, or any link contained in any linked site. We provide such links only as a convenience, and the inclusion of a link on the Site does not imply endorsement of the linked site by the Fisher Center. If you provide any PII through any such third party website, your interaction will occur on such third party’s web site (not the Sites) and the PII you provide will be collected by, and controlled by the privacy policy of that third party. We recommend that you familiarize yourself with the privacy policies and practices of any such third parties. PLEASE NOTE THAT THIS POLICY DOES NOT ADDRESS THE PRIVACY OR INFORMATION PRACTICES OF ANY THIRD PARTIES.

c. Changing or Removing Your PII. We provide you with several options for reviewing, correcting, updating or deleting PII that you have previously provided through the Site:

1. You may log into your [member information page] and review, change and/or delete the information in your Profile.

2. You may also e-mail us at info@alzinfo.org

Please note that we may need to retain certain information for record keeping purposes, and there may also be residual information that will remain within our databases and other records, which will not be removed from there. We also reserve the right, from time to time, to re-contact former users of the Sites. Finally, we are not responsible for removing information from the databases of third parties with whom we have already shared your PII.

We reserve the right to change this Policy. You can determine when this Policy was last revised by referring to the “LAST UPDATED” legend at the top of this page. Any changes to our Policy will become effective upon posting of the revised Policy on the Sites. Use of the Sites following such changes constitutes your acceptance of the revised Policy then in effect.

The Sites are controlled and operated by the Fisher Center from the United States and are not intended to subject the Fisher Center to the laws or jurisdiction of any state, country, or territory other than that of the United States. The Fisher Center does not represent or warrant that the Sites or any part thereof are appropriate or available for use in any particular jurisdiction. Those who choose to access the Sites do so in their own initiative, and are responsible for complying with all local laws, rules and regulations.

Note regarding the use of These Sites by Children: The Sites are not directed to individuals under the age of thirteen (13), and we request that such individuals not provide Personally Identifiable Information through the Sites.

You may contact us at info@alzinfo.org