Alzheimer's Community Links

Alzheimer's Disease & Aging
Health Resources Outside of The United States
Caregiving Resources
Hospice Care
Parkinson's Disease Research
Alzheimer's Blogs
Miscellaneous
ALZHEIMER’S DISEASE & AGING
Administration on Aging (AoA)
The US Administration on Aging is an agency in the US Department of Health and Human Services, is one of the nation's largest providers of homecare and more.
http://www.aoa.gov
National Institutes of Health (NIH)
Official website of the National Institutes of Health (NIH). NIH is one of the world's foremost medical research centers.
www.nih.gov
NIH – Alzheimer’s disease
www.nlm.nih.gov/medlineplus/alzheimersdisease.html
NIH – Health insurance services
www.nlm.nih.gov/medlineplus/healthinsurance.html
NIH – Financial assistance
www.nlm.nih.gov/medlineplus/financialassistance.html
National Institute on Aging
A part of NIH, provides information on aging research, training, health information dissemination, and other programs relevant to aging and older people. NIA has been designate the primary Federal agency on Alzheimer’s disease research
www.nia.nih.gov
Medline Plus
Health Information on all health conditions from the National Library of Medicine.
http://www.nlm.nih.gov/medlineplus
The Alzheimer's Disease Education and Referral (ADEAR) Center
A service of the Nat’l Inst. of Health with information on research, clinical trials, Alzheimer’s disease publications, links to other Federal resources.
www.alzheimers.org
ClinicalTrials.gov
Provides regularly updated information about federally and privately supported clinical trials
www.clinicaltrials.gov
New York City Department for the Aging
Guide to the wide range of services available to older New Yorkers and their families.
http://www.nyc.gov/html/dfta
Alzheimer's Association
The Alzheimer’s Association is a leading voluntary health organization in Alzheimer care, support and research.
www.alz.org
Alzheimer’s Disease Research Centers
For a listing of the 31 ADRC’s across the country funded by NIA go to:
www.nia.nih.gov/Alzheimers/ResearchInformation/ResearchCenters
Alzheimer Research Forum
The Alzheimer Research Forum, a dynamic online scientific knowledge base, reports on the latest Alzheimer's scientific research and develops databases Containing tests, drugs and therapies, patient care, and caregiving support information.
www.alzforum.org
HEALTH RESOURCE OUTSIDE OF THE UNITED STATES
Instituto Superiore di Sanita, Rome, Italy
The Higher Institute of Health, main technical-scientific organ of Italy’s nation Health Services, is a public agency that conjugates activates of search to that of advising, formatting and control applied to the protection of the public health.
http://www.iss.it
Alzheimer's Disease International
An umbrella organization of national Alzheimer Associations around the world.
www.alz.co.uk
CAREGIVING RESOURCES
AgeNet Eldercare Network
To Find Senior Housing Or Care. Free, No Obligation Consultation With Our Senior Care Specialists. Click here or Call (866)414-4143
www.caregivers.com
The Alzheimer’s Store
The Alzheimer's Store is dedicated to providing unique products and information for those caring for someone with Alzheimer's disease.
www.alzstore.com
Alliance for Aging Research
Independent, not-for-profit organization founded in 1986 to promote medical research into human aging.
http://www.agingresearch.org
American Association of Retired Persons (AARP)
Organization for mature adults 50 and above. Information on health, long-term care, economic security, independent living and consumer issues.
www.aarp.org
Family Caregiver Alliance (FCA)
A clearinghouse on brain disorders, caregiver assistance and long-term care public policy.
www.caregiver.org
National Alliance for Caregiving
Information on caregiving issues & research studies
www.caregiving.org
National Adult Day Services Association
Information on adult day services and research plus a national database of adult day service providers
www.nadsa.org
Senior Home Care
Hebrew SeniorLife is a 100+ year-old organization committed to maximizing the quality of life of seniors through an integrated network of housing, health care, research, and teaching programs.
www.hebrewseniorlife.org
Alzheimer Caregiver Needs
Caring.com was created to help you care for your aging parents and other loved ones. Our mission is to give you the information and other resources you need to make better decisions, save time, and feel more supported.
www.caring.com
Alzheimer Caregiver Needs
Caring.com was created to help you care for your aging parents and other loved ones. Our mission is to give you the information and other resources you need to make better decisions, save time, and feel more supported.
www.caring.com
Home Care Phoenix
Offers tools and information to evaluate assisted living centers / senior living options in and around Phoenix
www.after55.com
Alzcast.org
The Copper Ridge Institute is a nonprofit organization that conducts research on, and education about, the care of people with Alzheimer’s disease and other memory-impairing disorders.
www.alzcast.org
MissingPatient.com
Service to help recover loved ones who wander.
www.MissingPatient.com
DementiaCaregiving101.com
Two sisters share their advice and experiences learned while caring for their mother as she battled Alzheimer's disease.
http://DementiaCaregiving101.com
Dementia Diary
For sixteen years, as his Mom's mental and physical health deteriorated, Bob Tell personally experienced the caregiver burnout that he writes about in "Dementia Diary, A Caregiver's Journal." This book, unique in giving a man's perspective on caregiving, uses humor and compassion to show the reader how he coped.
http://www.dementia-diary.com
Bayada Nurses
If you need assistance caring for a loved one with Alzheimer’s disease, you want specialists. Bayada Nurses understands that from securing the home environment to bathing, or skilled care for a chronic condition, Bayada’s caregivers can provide you with the peace of mind you expect.
http://www.bayada.com
HOSPICE CARE
Hospice Foundation of America
Hospice Foundation of America is a not-for-profit organization that exists to help those who cope personally or professionally with terminal illness, death, and the process of grief and bereavement.
www.hospicefoundation.org
National Hospice Foundation
Established in 1992, the National Hospice Foundation is committed to leading global, philanthropic efforts advancing quality, compassionate, end-of-life care for all. www.nationalhospicefoundation.org
PARKINSON’S DISEASE RESEARCH
The Institute for Neurodegenerative Disorders (IND)
An independent not-for-profit research institute located in New Haven, Connecticut. The mission of IND is to develop improved treatments, diagnostic tools and educational programs for neurologic disorders such as Parkinson disease, Huntington disease and Alzheimer disease through clinical research.
http://www.indd.org
ALZHEIMER'S BLOGS
Alzheimer's Dad
A blog about a man's 3-year journey, now ended, through Alzheimer's Disease, and his daughter's feelings about it.
http://alzheimersdad.blogspot.com
The Dementia Caregiver's Toolbox
Tips, news bites, product reviews, and people in the news for professional and family caregivers who want to keep up with the world of dementia care.
http://nurturingnuggets.typepad.com/the_nurturing_nuggets_blo
Dealing with Alzheimer's Blog
The journal of a woman dealing with Early On Set Alzheimer's Disease.
http://www.creatingmemories.blogspot.com
Alzheimer's Reading Room
The Alzheimer's Reading Room is the number one blog website on the Internet for advice, information, research, and insight into Alzheimer's disease.
http://www.alzheimersreadingroom.com
Activites Director
An expert Activities Director shares activity ideas, especially for those with Alzheimer's disease and related dementias.
http://activitiesdirector.blogspot.com
Dementia Tips
Susan Berg, a healthcare professional, and Brian Willie, of the Alzheimer's Legal Resource Center, share tips and information that may help those struggling with Alzheimer’s or dementia.
http://dementiatips.blogspot.com
Follow You, Follow Me: Our Journey
Karen Henley writes about caring for her family, her husband’s diagnosis of Early Onset Alzheimer’s, and raising awareness for the disease.
http://www.henleysheroes.blogspot.com
Alzheimer’s Care at Home
Dedicated to keeping Alzheimer's and dementia patients in the place they most want to be... their own home.
http://www.AlzheimersCareatHome.com
Minding Our Elders
Support for caregivers, the sandwich generation, boomers, and more by Carol Bradley Bursack, a caregiving expert, author, speaker, and columnist.
http://www.mindingoureldersblogs.com
KnowItAlz Blog
KnowItAlz is a single source for the caregivers and loved ones with an emphasis on the lighter side of living with Alzheimer’s Disease.
http://www.knowitalz.com
The Trip Over - Notes on the road to Alzheimer's
Don Hayen, diagnosed with Alzheimer's disease in April, 2005, writes about his life on "the road to Alzheimer's".
http://www.thetripover.com
Early Onset Alzheimer's
Linda Fisher is a longtime Alzheimer's advocate and writer who blogs about her life, her family, and her husband's early onset Alzheimer's.
http://www.earlyonset.blogspot.com
The Caregiver Chronicles
Bob Tell is a writer from Michigan who blogs about issues commonly faced by people who are caring for a loved one with Alzheimer's. He emphasizes the importance of humor in dealing with burnout, a common problem for caregivers. His experiences derive from caring for his mother during her 16-year battle with the disease.
http://www.caregiverchronicle.blogspot.com
Caregiving, Aging, and Alzheimer's
A caregiver's journal: Commentary, personal experience, articles, and resources on caregiving, Alzheimer's, dementia and aging.
http://artbylt.blogs.com/caregiving
The Spiritual Journey of Family Caregiving
For five years, ending in 2005, Sheryl Karas worked as a Family Caregiving Consultant at the Alzheimer's Association and Del Mar Caregiver Resource Center and wrote a monthly newsletter for families taking care of loved ones with progressive incurable memory loss and dementia. Those articles are now a book and this blog was created to share it with you.
http://spiritualcaregiving.blogspot.com
Alzheimer's Disease Caregiver
Alzheimer's Disease Caregiver is a personal blog written by Sherri O'Neil about her journey of caring for her mother who has Alzheimer's disease. Sherri writes about her personal struggles of dealing with her mom's illness while trying to raise a family and hold down a job. She also shares helpful information she as she learns more about Alzheimer's and caregiving.
http://alzheimersdiseasecaregiver.com
The Tangled Neuron
A layperson blogs about Alzheimer's and dementia research. In-depth interviews with care professionals, researchers and people with memory loss on topics such as Alzheimer's, Lewy body dementia, Mild Cognitive Impairment, coping mechanisms, clinical trials and risk of the developing dementia.
http://www.tangledneuron.info
A blog inspired by my Mom’s Brain
A woman writes about her mother’s Alzheimer’s and her role as a family caregiver.
http://momsbrain.wordpress.com
MISCELLANEOUS
Memories From My Life
MEMORY TRIGGER POSTERS: Create a memory photo poster for your loved ones to help them remember important people, places, and events in their lives. Upload your own pictures. Order online.
http://www.memoriesfrommylife.com
The American Chronic Pain Association
ACPA is here to facilitate peer support and education for individuals with chronic pain and their families so that these individuals may live more fully in spite of their pain. To raise awareness among the health care community, policy makers, and the public at large about issues of living with chronic pain.
http://www.theacpa.org
Pillow Talk
When it comes to the one you love, Pillowtalk cards are everything you would ever want or need to say. Because what is love, if every moment cherished can be forgotten? That's why 10% of proceeds go to Alzheimer's research. It is a card that expresses desire in a classic yet enticing and provocative fashion. Perfect for Anniversaries, Birthdays, Bride & Groom and more!
http://www.pillowtalkgc.com
Chakra Jewel
CHAKRA JEWELS are semi-precious stones set in sterling silver. Due to availability, these natural treasures from the earth will change from time to time. We search the world to bring you fine quality gem specimens so that you may enjoy the beauty and benefits of Chakra Jewels. 5% of your total purchase will be donated to your choice of designated charities.
http://www.chakrajewel.com
Retirement Living TV
Retirement Living TV (RLTV) is the only cable network dedicated to serving adults 50+ by providing information and entertainment relevant to their needs and lifestyles. RLTV's Emmy award-winning programming focuses on everything from healthcare, finance, travel, lifestyle, comedy, and drama.
http://www.rl.tv
Chess
The Best Free chess website. No downloads needed, just click ‘play chess.’ Feel free to host your own tournaments as well as your own leagues!
http://www.chessboss.com
America Chess
The Best Free chess website. No downloads needed, just click ‘play chess.’ Feel free to host your own tournaments as well as your own leagues!
http://www.americaboss.com
BioMedSearch
This is a free biomedical search site which has all of all of NIH's PubMed documents, plus many more (often in full text). It also has account features such as portfolios to save documents, the ability to share documents (and comment on them) between users, and keyword-based alerts.
http://www.BioMedSearch.com
Augsta Lost Lullaby
My name is Augusta Crawford. I recently wrote & recorded a song LOST LULLABY. I believe everyone is given a gift to use in life & people are brought into our lives for a reason. Last year, during my freshman year in High School I met Bobby Lemaster. I had no idea how he would come to inspire me; to discover this gift through my music. This inspiration came the day I learned Bobby's grandmother has Alzheimer's Disease. MY GOAL is to RAISE $10,000.00+ for The Fisher Center for Alzheimer's Research Foundation
MY PLAN is to GIVE EVERYONE who makes a donation (of $10.00 or more) to The Fisher Center a FREE COPY of my LOST LULLABY CD & add their name to my websites: "A WALL TO REMEMBER."
http://www.augustalostlullaby.com
“Soup Classics from Custom Catering” by Joan Gavagan
Help us put Alzheimer's disease in its place and make "it" a memory.
Plant a seed of hope in your heart for those afflicted with this disease.
Please visit soupclassics.com, where you can purchase a delightful book and at the same time make a difference.
http://soupclassics.com/
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